He is always tired, and he hurts all the time. Patrick Schutz of Neuchâtel has fibromyalgia – an invisible condition that is not recognized by disability insurance.
Pain, pain, nothing more than pain: Patrick Schuts (41) from Neuchâtel always has the feeling that he has the flu – no fever, but with enormous lead fatigue. He would like to stay in bed all day and spend time there. “Every part of my body hurts, fortunately not all at the same time,” he told L’Illustré magazine.
Patrick Schutz and his partner have a three-year-old daughter, Naya.
Even if you play with it for only 20 minutes, it takes away the energy for the whole day. “When I’ve slept, and then I wake up, I’m as tired as I’ve ever slept.” He has lost many friends who think he pretends. At night you can not go out with them like before, go to bed at 7 pm to relax.
The diagnosis of his suffering a year ago revealed: Fibromyalgia. It is estimated that 400,000 people are affected in Switzerland. The problem: Fibromyalgia is not recognized by disability insurance (IV). There is no scientific evidence: there is no evidence found in the blood and X-rays. Hundreds of symptoms characterize fibromyalgia. It is determined by the exclusion of other diseases and by means of a test: usually soft spots are used.
If eleven or more of 18 (soft spots) have increased pain, suspected fibromyalgia is present. These diagnostic points are close to the tendinomotor approach. The cause of the disease is unclear and can only be limited by medical measures.
Patrick’s protection should take many medications: painkillers, antidepressants, vitamins, drugs to protect the stomach and drops on sensitive and dry eyes. “It’s an invisible suffering,” says Schutz. He wants as many people as possible to know about it, has created a Facebook site, so that fibromyalgia reaches the consciousness of the population.
Patrick has been unemployed for two years and lives on welfare. If the IV would at least partially recognize the suffering, it would have already been helped. So you expect financial support because of your depression and chronic fatigue. His greatest hope is a popular initiative that has just been launched and demands the recognition of fibromyalgia as a disease.
He plays with his daughter Naya, but after 20 minutes his energy is exhausted.
Patrick is lying on a rug to ease the pain.
Patrick’s relationship with the couple Sylvie has also become difficult. There are no ordinary television songs because he is sleeping early. Naya is surprised that Dad goes to bed at the same time as her. Patrick Schutz does not know how long he can endure his condition: “I’m only 41 years old and live in the body of an old man!”
Patrick suspects that even traumatic experiences could be triggered in the past. At the age of 17 he was present when his father hit a man with a stone in front of his eyes.
Patrick no longer has contact with him. The birth of her daughter was also bad: almost the mother and child had died. Patrick: “These events have shaken me deeply.”
He would like to do something with his wife and daughter, but his suffering and the little money he receives do not make this desire come true.